Managing symptoms, gaining insights & inspiring hope

in the neurofibromatosis (nf) community

By combining day-to-day support with long-term optimism, this app becomes a trusted companion for navigating life with NF.

Like many chronic illnesses, Neurofibromatosis (NF) impacts patients on a physical, emotional, and social level, with symptoms and severity that can vary widely, even within the same family.

This app is designed to empower individuals and families affected by NF by offering comprehensive support tools tailored to their unique needs and allowing for seamless communication between the patient, family, and care network so no details fall through the cracks.

• It helps users manage medical appointments, medication schedules, and school accommodations with built-in reminders and easy-to-use organization features that are integrated with the tools that each user prefers, including iCloud, Google, and Microsoft accounts.

• Users can track symptoms over time to identify patterns and possible triggers—crucial information to share with healthcare providers.

• In addition to these practical tools, the app fosters a sense of hope and connection by sharing uplifting news about medical research breakthroughs and treatment advances.